Today is Easter Sunday. And most families are at church. But we aren’t one of those families…
I’ve always tried to keep my faith and my blog separate so if this isn’t for you that’s ok, you can just skip over it. But if you are a person who’s struggled in your faith as a parent of a child with Sensory Processing Disorder, stick around here today you are in good company. I find that on Christmas and Easter I wish that Sensory Processing Disorder and church worked together better. But they just don’t.
So here’s a little bit of our background, Sensory Dad so happens to have been in church leadership and has a degree in theology. I studied enough theology in college to know more than I should. We were extremely active in a church for over a decade. After Miss Sensory was born going to church became increasingly more challenging.
There was before church meltdowns and barely making it to the church.
There were two parents on extreme edge the entire time thinking she could explode at any second.
There were the Sundays that my husband would be up in front of the church and I would wonder if I would have to leave with Miss Sensory and he’d have to figure out a way home.
Then there was the post church meltdowns.
I won’t even get started with the looks. Or the time, I barely left the nursery room and overheard the staff talking about my parenting. There was a lot more than just Sensory Processing Disorder going on during a Sunday morning that made me want to leave the church, but that’s another story.
One Sunday morning as we were trying to get Miss Sensory ready, in the few words she had she told us that Church hurt her. The sound. All the people. The smell.
It was in that moment that my husband called someone to fill his place for that morning and he resigned that night. It’s been a year and half since that day and if this is anything like where you are I want to tell you that it’s ok. If you wish there was some level of normal so you could do something as simple as go to church on a Sunday morning here’s what I want to tell you…
God is bigger than a building, he’s bigger than four walls and a Sunday morning. Even though in our culture we get told that it’s a necessity to Christian faith, I want to tell you that you can worship God at the kitchen sink. He doesn’t care where you are, what he does care about is your heart. He has entrusted you with a dear precious child who’s wired a little differently and often the mainstream Church doesn’t fit well with our kids. Like so many other things in our life we need to adjust to our kids.
I know it’s a hard thing to let go of. But I will tell you that expanding your faith beyond a Church and a Sunday morning service is a challenge on its own and I can tell you that your faith can grow deeper and stronger.
In a perfect world there would be a church that would fit all of us but in our family we’ve always been more focused on what really matters. It’s not about what church we do or don’t go to. It’s about God’s grace and love for us and others. And it’s about our faith. I’ve learned to live out those two simple concepts more outside of the church than inside the church, even as leadership.
If you wish you were in church this morning celebrating the resurrection, remember that it doesn’t matter if you aren’t inside a Church building. Celebrate in your home and your heart, right where you are.