Dear Occupational Therapy,
I am done with you.
It just isn’t working. And I am learning that when things aren’t working it’s time to be done.
But, it’s so hard!! It’s the only thing that is supposed to help with Sensory Processing Disorder.
And for over 3 years we have pushed through OT with all the hope and faith I had, that this would do something.
It wasn’t a complete waste of time and money. It did do some things (I think?) but for us it just wasn’t as magical as it appears to be for other families, who have kids with SPD.
I recently did an impromptu survey in one of the SPD parent support groups. There were 33 comments, I asked parents how long their child had been in OT and if they could rate it on a scale of 1-10 (1 being NOT very effective and 10 being very effective) where would they rate it. Most of those comments were rated on a 10 of effectiveness and a lot of those families rated it even higher than a 10!! And most of those families had been in OT for less than a year.
It’s obviously not you… but it’s us. You see for me, it’s hard to view OT as being effective. We’ve certainly gave it more than our fair share of trying. Including traveling across the country for the best.
But our experience is just a little bit more complicated than the average case.
We worked harder than the average case.
We did absolutely everything and beyond what the OT told us to do.
We researched the daylights out of everything.
We attended an OT conference with our entire team.
And still our girl would most of the time come out worse than when she went in. It was a disaster. There wasn’t any sitting still better, better focus, better attention, better behavior, less aggression or anything. And the season where we increased OT guess what also increased?!?!? All the mentioned above… it only got worse.
We saw mild improvements that we wonder if it was more developmental than OT improving it. She doesn’t run around in a circle constantly without stopping, as much. She will wear pants most cold days.
But when we weren’t hitting the mark with the OT near us (near by the way was an hour away) we traveled to the best.
We did everything they suggested. And we are still faced with the same reality.
She still puts everything in her mouth. She still wanted her shoes insanely tight. She still has a lot of sensitivity and she still never sits still. She still jumps off the furniture.
So here we are. Having spent thousands upon thousands of dollars and we haven’t hit the mark yet.
So, OT I’m done with you. I wish I would have seen this earlier. But, I didn’t want to have any regrets.
I’m done putting all my time, energy and hope into you working because clearly it’s not working for us. It’s just time to be done.
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